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BackAK supports, in principle, efforts to bring health data together and evaluate it scientifically, as this can help to improve diagnostics and therapies and set the course for health policy more rapidly. However, in compliance with data protection, transparent regulation for those affected is needed concerning who has access to the use of health data, for what reasons and to which data. In AK's opinion, the Commission's proposed European Health Data Space is extremely delicate in terms of fundamental rights, as there as there are considerable implications for the right to data protection of consumers and patients. In particular, any traceability to individuals must be ruled out unless there is express consent to the use of health data.

Daniela Zimmer
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Alice Wagner (Büro Brüssel)
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